I Forgot
Submitted by Debbie on 2008, March 25 - 09:35.
During the process of caring for my dad, I forgot one important thing. I have gotten so wrapped up and wrapped around the bend, that the basic reason I am doing this got lost in the shuffle. Well, let me try to explain...
Like a good caregiver, I went to the doctor for my annual checkup. You know, the girlie one. I was ever so confident that I breezed in and out with a "Pip, pip, cheerio, old man." Yes, I hate to say it, but I was a wee bit smug—and, by now, I should know that only gets me into trouble.
So, I had the tests and skipped off to address my state legislators in Juneau, only to come home to find several messages from my doctor. Now, I know they never call to deliver good news, so I braced myself. Seems I managed to fail both a Pap smear and a mammogram in the same week. Go Team Newsham!!!
The doctor was going on vacation for a couple of weeks, so we made an appointment for when he'd be back. In the meantime, I was sent for another mammogram. I am not going to say a mammogram is the worst thing that ever happened to me, but it is a bit...awkward, at best. They zoomed in on my little mass. I was told to stay there while it was read. Then I was sent for an ultrasound. While doing the ultrasound, the technician asked me to hum. So there I am, humming my little heart out, while she frowns and finally says she is getting help. Another woman is called in and I am asked to roll here, roll there, arm here, arm there. Finally, I am draped like a Rubenesque sculpture, one arm bent over my head, lying back, shirt carelessly fallen half open. They whisper and look, whisper and look and repeat. Then they come to agreement and send me off. Two days later my doctor calls and says, "No worries. You have a speck that is very nice and we will look at it again in six months." Whew!
Next was the Pap follow-up. I was told to come in for an ultrasound to see what was there. This supposedly is pretty much a meet-and-greet between my doctor and me. Once again the screen shows black-and-white blobs. They obviously have significance to the doctor, as he's nodding sagely and taking measurements. Soon he perks up and shares that I have lovely ovaries. Well, what woman wouldn't like to hear that? The only response I could come up with was, "And you, doctor, have a lovely spleen."
He finishes and we have a cheerful talk about risk factors and aggressive treatments and we schedule a biopsy. I will spare you the details, but I am less than enthused, as the ultrasound is considered "well tolerated." Ha! Well tolerated by whom? The doctor? Certainly NOT the patient. And the biopsy is not so well tolerated, either. Oh, lucky me!
On my way home I realize what is going on. They think I have cancer. This is a staggering realization for me. I mean, cancer is a major disease. I mean, it has its own ribbon, walks, foundations and so on. I am struck with horror and terror. Then I feel like I am in a bad dream. How could this happen to me? This cannot be my life.
And then I come to that realization that got me started on this blog entry. I am a caregiver for someone who is ill. All the fear, the anxiety, the not feeling good, the being cranky and intimidated by the medical-ese, the loss of personal space, etc., is second nature to those for whom I have cared. They, too, experienced each of these sensations time and time again. No matter how kind or professional the provider, our loved ones feel sick, tired, scared and more.
Somehow I lost sight of that along way. Feeling sick when you are sick is so obvious that I am shocked I forgot. So, as my journey begins and my dad's continues, I hope to be a little wiser, a little more understanding, and as loving as I can.
Comments
Caring for the Caregiver
I would just like to add my two cents worth about this blog and the many others from this wonderful woman. Debbie has become a very important part of my life in the last few months, and I am ever-so thankful that she has such an open heart that no matter what amount of stress she is under or how ill she is, she always finds time for anyone who needs her (which on many occaisions lately has been me).
I met Debbie in that "silly on-line game" that she referred to in an earlier blog. We became friends almost immediately, she is funny, honest and genuinely cares about others and it shows through in her conversations. I too am a caregiver. I care for my brother who has CPOD and I myself am disabled with osteoperosis and osteoarthritis, and Debbie has been my life-line in many ways. She (first off) directed me to this web-site and I have received endless amounts of helpful information from this site, thank you to all who make this happen. Mostly though, she has been a friend, a good friend who has helped me understand myself and why I do some of the things I do, and that; no, Im not "as" crazy as I thought I was, still crazy, but in a good way. I have read each and every one of Debbie's blogs and the way she writes is exactly the way she is, honest, genuine and extremely friendly and funny, she is definitly a miracle for me and my life. I know she is going to be very embarassed by all the praise she thinks I have given her here, if she knew the truth of what a blessing she has been in my life she would turn permanently red. Thank you Debbie, your endless kindness, your fantastic sense of humor, your giving and loving nature have made my life a much better place to live, and you have made me a better person for knowing you. I love you girly girl, keep on rockin on!
mom and dad moving in!
My parents live just far enough away to make a daily visit out of the question.
My mom is 86 and dad is 91 they love each other, however they sleep in seperate rooms. We had just recently remodeled our house for ourselves, the kids out on their own. We are still paying on this remodel and now we will need to re-do one of our bathrooms completly for their use. We have three bedrooms not a big house and they want two rooms. Now that will take another alteration for this to happen. I was thinking of giving them the master bedroom and adding a sunroom to make it a little more private. I feel like I'm being pulled in all different directions, my husband is ok with them coming in to live with us. But, he dosent want to add a sunroom due to the cost and that was not our plan for are backyard. Then my parents want the two room I have decorated just so. The option of them going to an assisted living place is out because my parents don't have any money except Social Secuity.
I guess what I'm asking, is there any assistance for the family who takes in the parents?
pulling my hair out!