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RESOURCE LIST FOR CEREBRAL PALSY

The following organizations may be helpful in helping you care for someone with cerebral palsy:

Cerebral Palsy International Research Foundation
1025 Connecticut Avenue
Suite 701
Washington, DC   20036
Phone: 1- 202-496-5061
Email: nmaher@cpirf.org

www.cpirf.org

About Us: The CPIRF "is a not for profit organization dedicated to funding research and educational activities directly relevant to discovering the cause, cure and evidence based care for those with cerebral palsy and related developmental disabilities."

Children's Neurobiological Solutions (CNS) Foundation
1826 State Street
Santa Barbara, CA   93101
Phone: 1-866-CNS-5580 (267-5580)
         1-805-898-4442
Fax: 1-805-963-6633
Email: info@cnsfoundation.org

www.cnsfoundation.org

About Us: The primary goal of CNS "is to promote development of effective treatments for children with neurological disorders as quickly as possible."

Easter Seals
233 South Wacker Drive
Suite 2400
Chicago, IL   60606
Phone: 1-312-726-6200
Toll Free: 1-800-221-6827
TTY: 1-312-726-4258
Fax: 312-726-1494
info@easterseals.com

www.easterseals.com

About Us: "Easter Seals has been helping individuals with disabilities and special needs, and their families, live better lives for nearly 90 years."

March of Dimes Foundation
1275 Mamaroneck Avenue
White Plains, NY   10605
Phone: 1-914-428-7100
        1-888-MODIMES (663-4637)
Fax: 1-914-428-8203
askus@marchofdimes.com

www.marchofdimes.com

About Us: "Our mission is to improve the health of babies by preventing birth defects, premature birth, and infant mortality."

New Horizons Un-Limited, Inc.
811 East Wisconsin Ave.
P.O. Box 510034
Milwaukee WI 53203
Phone: 1-414-299-0124
Email: horizons@new-horizons.org

www.new-horizons.org

About Us: "It is the mission of New Horizons Un-Limited to make information and life experiences accessible to individuals with lifelong disabilities."

Office of Special Education and Rehabilitative Services
U.S. Department of Education
400 Maryland Ave., S.W.
Washington, DC 20202-7100
Phone: 1-202- 245-7468

www.ed.gov/about/offices/list/osers/index.html

About Us: OSERS " understands the many challenges still facing individuals with disabilities and their families. Therefore, OSERS is committed to improving results and outcomes for people with disabilities of all ages. OSERS supports programs that serve millions of children, youth and adults with disabilities."

OR

Clearinghouse on Disability Information
Office of Special Education & Rehabilitative Services
Communications and Media Support Services
U.S. Department of Education
550 12th Street, SW, Rm. 5133
Washington, DC   20202-2550
Phone:1-202-245-7307
TTD: 1-202-205-5637
Fax: 1-202-245-7636
About Us: "The Clearinghouse provides information to people with disabilities, or anyone requesting information, by doing research and providing documents in response to inquiries. Information provided includes areas of federal funding for disability-related programs."

Pathways Awareness Foundation [For Children With Movement Difficulties]
150 N. Michigan Avenue
Suite 2100
Chicago, IL   60601
Phone: 1-312-893-6620
         1-800-955-CHILD (2445)
Fax: 1-312-893-6621
Email: friends@pathwaysawareness.org

www.pathwaysawareness.org

About Us: Pathways Awareness is "dedicated to early detection and early intervention for children with motor delays."

Pedal-with-Pete Foundation [For Research on Cerebral Palsy]
P.O. Box 274
Kent, OH   44240
Phone: 1- 800-304-PETE (7383)
Fax: 1-330-673-1240
Email: petezeid@aol.com

www.pedalwithpete.com

About Us: The Pedal-With-Pete Foundation was "established to raise money for research to improve the quality of life for those people with cerebral palsy."

United Cerebral Palsy
1660 L Street, NW
Suite 700
Washington, DC 20036
Phone: 1-202-776-0406
          1-800-872-5827
Fax: 1-202-776-0414
Email: info@ucp.org

www.ucp.org

About Us: The UCP strives " to ensure the inclusion of persons with disabilities in every facet of society-from the Web to the workplace, from the classroom to the community...[and] advance the independence, productivity and full citizenship of people with disabilities through an affiliate network."

WE MOVE (Worldwide Education and Awareness for Movement Disorders)
204 West 84th Street
New York NY 10024
Phone: 1-212-875-8312
Fax: 1-212-875-8389
Email: wemove@wemove.org

www.wemove.org

About Us: WE MOVE "utilizes creativity, innovation, and collaborative approaches to improve awareness, diagnosis, and management of movement disorders among people living with these conditions and the professionals who care for them."

 

Comments

Other Cerebral Palsy Resources

I would also suggest the Cerebral Palsy Family Network, which can be found at http://www.cpfamilynetwork.org/

They have a large selection of resources that are targeted towards CP families like myself.