RESOURCE LIST FOR DOWN SYNDROME
The following organizations may be helpful in helping you care for someone with Down Syndrome:
Band of Angels Foundation
3048 Charlwood Drive
Rochester Hills, MI 48306
Phone: 1-248-377-9308
Fax: 1-248-230-3146
About Us: "Band of Angels provides support for families of individuals with Down syndrome, autism and other disabilities."
Easter Seals
233 South Wacker Drive
Suite 2400
Chicago, IL 60606
Phone: 1-312-726-6200
Toll Free: 1-800-221-6827
TTY: 1-312-726-4258
Fax: 312-726-1494
info@easterseals.com
About Us: "Easter Seals has been helping individuals with disabilities and special needs, and their families, live better lives for nearly 90 years."
Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
Bldg 31, Room 2A32, MSC 2425
31 Center Drive
Bethesda, MD 20892-2425
Or
NICHD Information Resource Center
Phone: 1-800-370-2943
TTY: 1-888-320-6942
Fax: 1-866-760-5947
Mail: P.O. Box 3006, Rockville, MD 20847
Email: NICHDInformationResourceCenter@mail.nih.gov
About Us: The NICHD was established to "investigate the broad aspects of human development as a means of understanding developmental disabilities, including mental retardation, and the events that occur during pregnancy. Today, the Institute conducts and supports research on all stages of human development, from preconception to adulthood, to better understand the health of children, adults, families, and communities."
March of Dimes Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Phone: 1-914-428-7100
1-888-MODIMES (663-4637)
Fax: 1-914-428-8203
askus@marchofdimes.com
About Us: "Our mission is to improve the health of babies by preventing birth defects, premature birth, and infant mortality."
National Association for Down Syndrome (NADS)
P.O. Box 206
Wilmette, IL 60091
Phone: 1-630-325-9112
Email: info@nads.org.
About Us: NADS is the oldest organization in the country serving individuals with Down syndrome and their families...Our mission is to ensure that all persons with Down syndrome have the opportunity to achieve their potential in all aspects of community life."
National Down Syndrome Congress
1370 Center Drive, Suite 102
Atlanta, GA 30338
Toll Free: 1-800-232-NDSC (6372)
Phone: 1-770-604-9500
Fax: 1-770-604-9898
E-Mail: info@ndsccenter.org
About Us: "The mission of the NDSC is to provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome."
National Down Syndrome Information Alliance
925 L Street, Suite 1200
Sacramento, CA 95814
Phone: 1-916-658-1686
Email: info@downsyndromeinfo.org
About Us: The DSIA "is committed to providing resources and support for those affected by Down syndrome while ensuring access to services, treatments and programs that enhance health, quality of life and productivity."
National Down Syndrome Society
666 Broadway, 8th Floor
New York, New York 10012
Phone: Goodwin Family Information and Referral Center
1-800-221-4602
Email: info@ndss.org
About Us: The mission of the NDSS "is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome."