RESOURCE LIST FOR EPILEPSY
The following organizations may be helpful in helping you care for someone with epilepsy:
Charlie Foundation to Help Cure Pediatric Epilepsy
1223 Wilshire Blvd.
Suite #815
Santa Monica, CA 90403
Phone: 1-310-393-2347
Fax: 1-310-453-4585
Email: ketoman@aol.com
About Us: "The Charlie Foundation was established in 1994 in order to raise awareness about the ketogenic diet as a treatment for childhood epilepsy."
CURE: Citizens United for Research in Epilepsy
730 North Franklin Street
Suite 404
Chicago, IL 60654
Phone: 1-312-255-1801
1-800-765-7118
Fax: 1-312-255-1809
Email: info@CUREepilepsy.org
About Us: CURE "is a nonprofit organization dedicated to finding a cure for epilepsy by raising funds for research and by increasing awareness of the prevalence and devastation of this disease."
The Epilepsy Foundation
8301 Professional Place
Landover, MD 20785
Phone: 1-301-459-3700
1-800-EFA-1000 (332-1000)
Fax: 1-301-577-2684
Email: postmaster@efa.org
About Us: "The organization works to ensure that people with seizures are able to participate in all life experiences; to improve how people with epilepsy are perceived, accepted and valued in society; and to promote research for a cure."
Epilepsy Therapy Project
P.O. Box 742
Middleburg, VA 20118
Phone: 1-540-687-8077
Fax: 1-540-687-8066
Email: info@epilepsytherapyproject.org
About Us: "The Epilepsy Therapy Project exists to overcome the barriers to successful translation of promising new research insights and to make new therapies a reality for patients."
People Against Childhood Epilepsy (PACE)
7 East 85th Street
Suite A3
New York, NY 10028
Phone: 212-665-PACE (7223)
Fax: 1-212-327-3075
Email: pacenyemail@aol.com
About Us: PACE "was founded by a group of parents in response to their experiences in caring for the medical, physical, social, educational, developmental and emotional needs of their children who suffer from epilepsy and severe seizure disorders...we currently provide telephonic networking, email systems and seminars to support, educate, and share information with families and caregivers of children who suffer from epilepsy."