RESOURCE LIST FOR KIDNEY DISEASE
The following organizations may be helpful in helping you with someone with kidney disease:
American Association of Kidney Patients
3505 East Frontage Road, Suite 315
Tampa, FL 33607
Phone: 1-800-749-2257
1-813-636-8100
Fax: 1-813-636-8122
Email: info@aakp.org
www.aakp.org
About Us: The AAKP " is a national non-profit organization founded by kidney patients for kidney patients... to educate and improve the health and well-being of chronic kidney disease (CKD) patients, those on hemodialysis, peritoneal dialysis and transplant recipients."
American Kidney Fund
6110 Executive Boulevard, Suite 1010
Rockville, MD 20852
Phone: 1-800-638-8299 or
1-866-300-2900 (Spanish)
Fax: 1-301-881-0898
Email: helpline@kidneyfund.org
About Us: "The mission of the American Kidney Fund is to fight kidney disease through direct financial support to patients in need; health education; and prevention efforts."
American Society of Nephrology
1725 I Street NW, Suite 510
Washington, DC 20006-2403
Phone: 1-202-659-0599
Fax: 1-202-659-0709
Email: email@asn-online.org
www.asn-online.org
About Us: The ASN's mission is "providing expert care to patients, performing cutting-edge medical research, or training the next generation of kidney experts."
American Society of Pediatric Nephrology
3400 Research Forest Drive, Suite B7
The Woodlands, TX 77381
Phone: 1-281-419-0052
Fax: 1-281-419-0082
Email: info@aspneph.com
www.aspneph.com
About Us: "Our primary goals are to promote optimal care for children with kidney disease through advocacy, education and research; and to disseminate advances in clinical practice and scientific investigation."
American Urogynecologic Society
2025 M Street NW
Suite 800
Washington, DC 20036
Phone: 1-202-367-1167
Fax: 1-202-367-2167
Email: info@augs.org
About Us: The AUGS is " the premier society dedicated to research and education in urogynecology, and the detection, prevention and treatment of female lower urinary tract disorders and pelvic floor disorders."
American Urological Association
1000 Corporate Blvd.
Linthicum, MD 21090
Phone: 1-410-689-3700
Hotline: 1-866-RING-AUA (746-4282)
Fax: 1-410-689-3800
Email: aua@auanet.org
About Us: The AUA is "the premier professional association for the advancement of urologic patient care, and works to ensure that its more than 16,000 members are current on the latest research and practices in urology."
Kidney Cancer Association
1234 Sherman Avenue, Suite 203
Evanston, IL 60202-1378
Phone: 1-800-850-9132
1-847-332-1051
Fax: 1-847-332-2978
Email: office@curekidneycancer.org
www.curekidneycancer.org
About Us: The KCA " is a charitable organization made up of patients, family members, physicians, researchers, and other health professionals globally. We fund, promote, and collaborate with the NCI, ASCO, AUA and other institutions on research projects. We educate families and physicians, and serve as an advocate on behalf of patients at the state and federal levels."
National Institute of Diabetes and Digestive and Kidney Diseases
National Institutes of Health
Office of Communications & Public Liaison
Building 31. Rm 9A06
31 Center Drive, MSC 2560
Bethesda, MD 20892-2560
Phone: 1-301-496-3583
About Us: NIDDK "conducts and supports research on many of the most serious diseases affecting public health."
OR
National Kidney Disease Education Program (NKDEP)
3 Kidney Information Way
Bethesda, MD 20892
Phone: 1-866-4-KIDNEY
1-866-454-3639
Fax: 1-301-402-8182
Email: nkdep@info.niddk.nih.gov
www.nkdep.nih.gov
About Us: NKDEP is "an initiative of the National Institutes of Health, designed to reduce the morbidity and mortality caused by kidney disease and its complications."
OR
Weight-Control Information Network (WIN)
1 WIN Way
Bethesda, MD 20892-3665
Phone: 1-877-946-4627
Fax: 202-828-1028
Email: win@info.niddk.nih.gov
win.niddk.nih.gov
About Us: WIN "provides the general public, health professionals, the media, and Congress with up-to-date, science-based information on weight control, obesity, physical activity, and related nutritional issues."
OR
National Kidney and Urologic Diseases Information Clearinghouse
National Institute of Diabetes and Digestive and Kidney Diseases
National Institutes of Health
3 Information Way
Bethesda, MD 20892-3580
Phone: 1-800-891-5390
TTY: 1-866-569-1162
Fax: 1-703-738-4929
Email: nkudic@info.niddk.nih.gov
About Us: NKUDIC was "established to increase knowledge and understanding about diseases of the kidneys and urologic system among people with these conditions and their families, health care professionals, and the general public."
National Kidney Foundation
30 East 33rd Street
New York, NY 10016
Phone: 1-800-622-9010
1-212-889-2210
Fax: 1-212-689-9261
About Us: The National Kidney Foundation "is dedicated to preventing kidney and urinary tract diseases, improving the health and well-being of individuals and families affected by kidney disease and increasing the availability of all organs for transplantation."
Renal Support Network
1311 N. Maryland Avenue
Glendale, CA 91207
Phone: 1-818-543-0896
Toll Free: 1-866-903-1728
Fax: 1-818-244-9540
www.rsnhope.org
About Us: RSN "continues to serve the kidney community by instilling health, happiness and hope through education, advocacy and awareness...one person at a time."