RESOURCE LIST FOR MULTIPLE SCLEROSIS
The following organizations may be helpful in helping you care for someone with MS:
Accelerated Cure Project for Multiple Sclerosis
300 Fifth Avenue
Waltham, MA 02451
About Us: "The Accelerated Cure Project for Multiple Sclerosis is a national nonprofit organization dedicated to curing (MS) by determining the cause of MS."
American Autoimmune Related Diseases Association
22100 Gratiot Avenue
East Detroit, MI 48201-2227
About Us: The AARDA is "dedicated to the eradication of autoimmune diseases and the alleviation of suffering and the socioeconomic impact of autoimmunity through fostering and facilitating collaboration in the areas of education, public awareness, research, and patient services in an effective, ethical and efficient manner."
Christopher Reeve Paralysis Foundation
636 Morris Turnpike
Short Hills, NJ 07078
About Us: The Foundation "is dedicated to curing spinal cord injury by funding innovative research, and improving the quality of life for people living with paralysis through grants, information and advocacy."
Consortium of Multiple Sclerosis Centers
359 Main Street, Suite A
Hackensack, NJ 07601
About Us: The purpose of the CMSC is "to maximize the ability of MS healthcare providers to impact care of people who are affected by MS, thus improving their quality of life."
Office of Special Education and Rehabilitative Services
U.S. Department of Education
400 Maryland Ave., S.W.
Washington, DC 20202-7100
Phone: 1-202- 245-7468
About Us: OSERS " understands the many challenges still facing individuals with disabilities and their families. Therefore, OSERS is committed to improving results and outcomes for people with disabilities of all ages. OSERS supports programs that serve millions of children, youth and adults with disabilities."
Clearinghouse on Disability Information
Office of Special Education & Rehabilitative Services
Communications and Media Support Services
U.S. Department of Education
550 12th Street, SW, Rm. 5133
Washington, DC 20202-2550
About Us: "The Clearinghouse provides information to people with disabilities, or anyone requesting information, by doing research and providing documents in response to inquiries. Information provided includes areas of federal funding for disability-related programs."
Multiple Sclerosis Association of America
706 Haddonfield Road
Cherry Hill, NJ 08002
About Us: The MSAA is "dedicated to enriching the quality of life for everyone affected by multiple sclerosis" ...providing "ongoing support and direct services to these individuals with MS and the people close to them."
Multiple Sclerosis Foundation
6350 North Andrews Avenue
Ft. Lauderdale, FL 33309-2130
About Us: The MSF "provides a comprehensive approach to helping people with MS maintain both their health and well-being" ...offering "programming and support to keep them self-sufficient and their homes safe, while our educational programs heighten public awareness and promote understanding about the illness."
National Ataxia Foundation (NAF)
2600 Fernbrook Lane North
Minneapolis, MN 55447-4752
About Us: "The Foundation's primary purpose is to support promising ataxia research and to provide vital programs and services for ataxia families."
National Institute of Neurological Disorders and Stroke (NINDS)
31 Center Drive
Bethesda MD 20892-2540
Phone #: 301-496-5751
800 #: 800-352-9424
About Us: The mission of the NINDS is "to reduce the burden of neurological disease- a burden borne by every age group, by every segment of society, by people all over the world."
National Multiple Sclerosis Society
733 Third Avenue
New York, NY 10017-3288
About Us: "The Society helps people affected by MS by funding cutting-edge research, driving change through advocacy, facilitating professional education, and providing programs and services that help people with MS and their families move their lives forward."
National Organization for Rare Disorders (NORD)
P.O. Box 1968
(55 Kenosia Avenue)
Danbury, CT 06813-1968
Voice Mail: 1-800-999-NORD (6673)
About Us: NORD is "a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service."
National Rehabilitation Information Center (NARIC)
8201 Corporate Drive, Suite 600
Landover, MD 20785.
About Us: NARIC is "one of three components of the Office of Special Education and Rehabilitative Services (OSERS) at the U.S. Department of Education. NIDRR operates in concert with the Rehabilitation Services Administration (RSA) and the Office of Special Education Programs (OSEP)."
Its mission is "to improve the options available to disabled persons. The ultimate goal is to allow these individuals to perform their regular activities in the community and to bolster society's ability to provide full opportunities and appropriate supports for its disabled citizens."
Paralyzed Veterans of America (PVA)
801 18th Street, NW
Washington, DC 20006-3517
Health Care Hotline: 1-800-232-1782
About Us: The PVA " works to maximize the quality of life for its members and all people with SCI/D as a leading advocate for health care, SCI/D research and education, veterans' benefits and rights, accessibility and the removal of architectural barriers, sports programs, and disability rights."
New Horizons Un-Limited, Inc.
811 East Wisconsin Ave.
P.O. Box 510034
Milwaukee WI 53203
About Us: "It is the mission of New Horizons Un-Limited to make information and life experiences accessible to individuals with lifelong disabilities."
WE MOVE (Worldwide Education and Awareness for Movement Disorders)
204 West 84th Street
New York NY 10024
About Us: WE MOVE "utilizes creativity, innovation, and collaborative approaches to improve awareness, diagnosis, and management of movement disorders among people living with these conditions and the professionals who care for them."