RESOURCE LIST FOR PARKINSON'S DISEASE
The following organizations may be helpful in helping you care for someone with Parkinson's disease:
American Parkinson Disease Association
135 Parkinson Avenue
Staten Island, NY 10305-1425
Phone: 1-718-981-8001
1-800-223-2732
In California: 800-908-2732
Fax: 1-718-981-4399
Email: apda@apdaparkinson.org
About Us: The APDA "was founded 'ease the burden and find a cure' for Parkinson's disease...the organization focuses its energies on research, patient support, education and raising public awareness of the disease."
Bachmann-Strauss Dystonia & Parkinson Foundation
Fred French Building
551 Fifth Avenue (at 45th Street),
Suite 520
New York, NY 10176
Phone: 1-212-682-9900
About Us: The Foundation was established "to find better treatments and cures for the movement disorders dystonia and Parkinson's disease and to provide medical and patient information."
Davis Phinney Foundation
1510 Zamia Ave Suite 102
Boulder Colorado 80304
Phone 303-733-3340
Fax 303-733-3350
Email: info@davisphinneyfoundation.org
www.davisphinneyfoundation.com
About Us: The DPF "is focused on promoting and funding innovative and progressive research into the benefits of quality of life therapies on Parkinson's disease."
Michael J. Fox Foundation for Parkinson's Research
Church Street Station
P.O. Box 780
New York, NY 10008-0780
Phone: 1-212-509-0995
1-800-708-7644
About Us: The Foundation " is dedicated to finding a cure for Parkinson's disease within the decade through an aggressively funded research agenda and to ensuring the development of improved therapies for those living with Parkinson's today."
Muhammad Ali Parkinson Center
Barrow Neurological Institute
500 W. Thomas Road,
Suite 720
Phoenix, AZ 85013
Phone: 1-602-406-4931
Email: info@maprc.com
About Us: MAPC is "committed to providing excellence in treatment, research, and education for patients and families affected by Parkinson's disease and other movement disorders regardless of ability to pay."
National Institute of Neurological Disorders and Stroke (NINDS)
31 Center Drive
Bethesda MD 20892-2540
Phone: 1- 301-496-5751
1-800-352-9424
Email: braininfo@ninds.nih.gov
About Us: The mission of the NINDS is “to reduce the burden of neurological disease - a burden borne by every age group, by every segment of society, by people all over the world.”
National Parkinson Foundation
1501 N.W. 9th Avenue
Bob Hope Road
Miami, FL 33136-1494
Phone: 1-305-243-6666
1-800-327-4545
Fax: 1-305-243-5595
Email: contact@parkinson.org
About Us: The mission of the NDF is "to improve the quality of care for people with Parkinson's disease through research, education and outreach."
Parkinson Alliance
P.O. Box 308
Kingston, NJ 08528-0308
Phone: 1-609-688-0870
1-800-579-8440
Fax: 1-609-688-0875
Email: admin@parkinsonalliance.org
About Us: The alliance was "formed to foster philanthropic activities to raise funds for the most promising Parkinson's disease research that will help find the cure."
Parkinson's Action Network (PAN)
1025 Vermont Ave., NW
Suite 1120
Washington, DC 20005
Phone: 1-202-638-4101
1-800-850-4726
Fax: 1-202-638-7257
Email: info@parkinsonsaction.org
About Us: PAN "serves as the voice of Parkinson's on numerous public policy issues affecting the Parkinson's community."
Parkinson's Disease Foundation (PDF)
1359 Broadway
Suite 1509
New York, NY 10018
Phone: 1-212-923-4700
Parkinson's Information Service (PINS) Toll-free Helpline: 1-800-457-6676
Fax: 1-212-923-4778
Email: info@pdf.org
About Us: The PDF is "working for the nearly one million people in the US who live with Parkinson's by funding promising scientific research to find the causes of and a cure for Parkinson's while supporting people with Parkinson's, their families and caregivers through educational programs and support services."
Parkinson's Institute and Clinical Center
675 Almanor Avenue
Sunnyvale, California 94085-2935
Phone: 1-408-734-2800
1-800-655-2273
Fax: 1-408-734-8522
Email: info2@thepi.org
About Us: PI is "America's only independent non-profit organization that provides basic and clinical research, clinical trials and a comprehensive movement disorder patient clinic for Parkinson's disease (PD) and related neurological movement disorders, all under one roof. Our mission is to find the causes, provide first class patient care and discover a cure."
Parkinson's Resource Organization
74-090 El Paseo Drive
Suite 102
Palm Desert, CA 92260-4135
Phone: 1-760-773-5628
Toll Free: 1-877-775-4111
Fax: 1-760-773-9803
E-mail: info@parkinsonsresource.org
About Us: "Our mission is to help families affected by Parkinson's forge through the journey of the disease's progression with as much quality as life can provide."
Parkinson's Unity Walk
P.O. Box 275
Kingston, NJ 08528
Phone: 1-866-PUW-WALK (789-9255)
Fax: 1-609-688-0875
Email: info@unitywalk.org.
About Us: PUW is "a grassroots organization, [which] began in 1994 through the dedicated efforts of patients, families, support groups, and friends who were affected by Parkinson's disease. Their main goal was to raise awareness and funds for research to find a cure for Parkinson's."
WE MOVE (Worldwide Education and Awareness for Movement Disorders)
204 West 84th Street
New York NY 10024
Phone: 1-212-875-8312
Fax: 1-212-875-8389
Email: wemove@wemove.org
About Us: WE MOVE "utilizes creativity, innovation, and collaborative approaches to improve awareness, diagnosis, and management of movement disorders among people living with these conditions and the professionals who care for them."