RESOURCE LIST FOR VISION DISORDERS
The following organizations may be helpful in helping you care for someone with vision disorders:
American Academy of Opthalmology
P.O. Box 7424
San Francisco, CA 94120-7424
Phone: 1-415-447-0213
Fax: 1-415-561-8533
About Us: The mission of the Academy is "to advance the lifelong learning and professional interests of ophthalmologists (Eye M.D.s) to ensure that the public can obtain the best possible eye care."
American Foundation for the Blind
2 Penn Plaza, Suite 1102
New York, NY 10121
Phone: 1-212-502-7600
Fax: 1-212-502-7777
Email: afbinfo@afb.net
About Us: The AFB is "a national nonprofit that expands possibilities for people with vision loss. AFB's priorities include broadening access to technology; elevating the quality of information and tools for the professionals who serve people with vision loss; and promoting independent and healthy living for people with vision loss by providing them and their families with relevant and timely resources. "
American Glaucoma Society
P.O. Box 193940
San Francisco CA 94119
Phone: 1-415-561-8587
Fax: 1-415-561-8531
Email: ags@aao.org
About Us: The mission of the AGS is "to promote excellence in the care of patients with glaucoma and preserve or enhance vision by supporting glaucoma specialists and scientists through the advancement of education and research."
American Health Assistance Foundation
22512 Gateway Center Drive
Clarksburg, MD 20871
Phone: 1-800-437-AHAF (2423)
Fax: 1-301-948-4403
Email: info@ahaf.org
About Us: The AHAF funds "research seeking cures for Alzheimer's disease, age-related macular degeneration and glaucoma, and provides the public with information about risk factors, preventative lifestyles, available treatments and coping strategies.
American Optometric Associaton
243 North Lindbergh Boulevard
St. Louis, MO 63141
Phone: 1-800-365-2219
About Us: The objectives of AOA "are centered on improving the quality and availability of eye and vision care."
Association for Education & Rehabilitation of the Blind & Visually Impaired
1703 N. Beauregard Street, Suite 440
Alexandria, VA 22311
Phone:1-703-671-4500
1-877-492-2708
Fax: 1-703-671-6391
About Us: The mission of AER is "to support professionals who provide education and rehabilitation services to people with visual impairments, offering professional development opportunities, publications, and public advocacy."
Foundation Fighting Blindness
11435 Cronhill Drive
Owings Mills, MD 21117-2220
Phone: 1-410-363-7139
Toll Free: 1-800-683-5555
TDD:1-800-683-5551
Email: info@FightBlindness.org
About Us: The mission of the Foundation Fighting Blindness, Inc. is "to drive the research that will provide preventions, treatments and cures for people affected by retinitis pigmentosa (RP), macular degeneration, Usher syndrome, and the entire spectrum of retinal degenerative diseases."
Glaucoma Research Foundation
251 Post Street, Suite 600
San Francisco, CA 94108
Phone: 1-415-986-3162
Toll Free:1-800-826-6693
Fax: 1-415-986-3763
About Us: GRF's mission is "to prevent vision loss from glaucoma by investing in innovative research, education, and support with the ultimate goal of finding a cure."
The Glaucoma Foundation
80 Maiden Lane, Suite 700
New York, NY 10038
Phone: 1-212-285-0080
Email: info@glaucomafoundation.org
About Us: The mission of TGF is" to fund groundbreaking research and to educate the public about the disease and the importance of early detection to prevent blindness."
Helen Keller National Center
141 Middle Neck Road
Sands Point, NY 11050-1299
Phone: 1-516-944-8900
TTY: 1-516-994-8637
Fax: 1-516-994-7302
Email: hkncinfo@hknc.org
About Us: The mission of the HKNC is "to each person who is deaf-blind to live and work in his or her community of choice."
National Eye Institute
Information Office
31 Center Drive MSC 2510
Bethesda, MD 20892-2510
Phone: 1-301-496-5248
Email: 2020@nei.nih.gov
About Us: "As part of the federal government's National Institutes of Health (NIH), the National Eye Institute's mission is to 'conduct and support research, training, health information dissemination, and other programs with respect to blinding eye diseases, visual disorders, mechanisms of visual function, preservation of sight, and the special health problems and requirements of the blind.'"
Office of Special Education and Rehabilitative Services
U.S. Department of Education
400 Maryland Ave., S.W.
Washington, DC 20202-7100
Phone: 1-202- 245-7468
www.ed.gov/about/offices/list/osers/index.html
About Us: OSERS "understands the many challenges still facing individuals with disabilities and their families. Therefore, OSERS is committed to improving results and outcomes for people with disabilities of all ages. OSERS supports programs that serve millions of children, youth and adults with disabilities."
OR
Clearinghouse on Disability Information
Office of Special Education & Rehabilitative Services
Communications and Media Support Services
U.S. Department of Education
550 12th Street, SW, Rm. 5133
Washington, DC 20202-2550
Phone:1-202-245-7307
TTD: 1-202-205-5637
Fax: 1-202-245-7636
About Us: "The Clearinghouse provides information to people with disabilities, or anyone requesting information, by doing research and providing documents in response to inquiries. Information provided includes areas of federal funding for disability-related programs."
Prevent Blindness America
211 West Wacker Drive, Suite 1700
Chicago, IL 60606
Phone: 1-800-331-2020
Fax: 1-847-843-8458
About Us: "Founded in 1908, Prevent Blindness America is the nation's leading volunteer eye health and safety organization dedicated to fighting blindness and saving sight."
American Society of Ocular Trauma
1201 11th Avenue South, Suite 300
Birmingham, AL 35205
Phone: 1-205-933-0064
Fax: 1-205-933-1341
Email: info@asotonline.org
About Us: ASOT functions "as the parent organization of the United States Eye Injury Registry. The purpose of this restructuring is to allow its participants to expand the field of Ocular Trauma and to serve as advocate for this cause through research, education, and legislation while continuing the valuable work of data collection."
OR
The United States Eye Injury Registry
About Us: The goals of USEIR are "to promote descriptive epidemiology of eye injuries, facilitating both analytical epidemiology research and development of preventive strategies; allow data collection on treatment outcomes; propose clinical trials to identify best treatment modalities; develop and implement utilization of an Ocular Trauma Scoring (OTS) system to make eye injury assessment consistent and accurate, aiding both prognostication and management; disseminate information regarding eye injury prevention and management to both the public and professional community."