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THE COPD CAREGIVER GUIDE: At Home with COPD

At-home advice for COPD caregivers

BY:MARGARET FARLEY STEELE

 

"COPD is a progressive disease, and the best we can do is slow it down,” says Norman H. Edelman, MD, professor of preventive medicine at State University of New York, Stony Brook, and a spokesman for the American Lung Association. That being the case, reducing smoke and other triggers in the home should be at the top of a caregiver’s must-do list.


Because smoke and fumes cause wheezing and flare-ups, doctors and pulmonary rehabilitation specialists recommend the following:

 

Ban tobacco smoke in and near the house. Also, avoid wood-burning fireplaces and incense. If you must heat with wood, keep a window open. And, when cooking, be sure to provide adequate ventilation.

 

Keep the home as dust free as possible. To keep dust mites down, Dr. Edelman advises eliminating draperies and carpeting and washing bedding weekly in hot water. For general cleaning, he recommends using a high-efficiency (HEPA or equivalent) vacuum when the COPD patient is out of the room because vacuuming stirs up dust. Although air cleaners are sometimes recommended, a recent report by the Global Initiative for Chronic Obstructive Lung Disease indicates they don’t appear to provide health benefits.

 

Avoid products with strong chemical odors. Paints, cleaning products and insecticides, for example, can be serious irritants. When you must paint or spray for bugs, do so when the person with COPD is out of the home.

 

Limit the use of fragrant sprays and lotions. Hair sprays, perfumes, after-shave lotions and air fresheners can cause negative airway reactions.

 

Pay attention to air-quality announcements. When outdoor air quality is poor or dust levels are high, keep windows closed.


Use a humidifier. Dry air from your heating system can exacerbate symptoms. “A lot of people need humidification with their COPD,” says James Shamiyeh, MD, a pulmonologist and clinical assistant professor of medicine at the University of Tennessee in Knoxville.

 

Display an artificial Christmas tree. Fragrances from live trees can be an irritant.

 

Centralize essentials. Keeping things most often needed in a central location minimizes the need for excess walking or stair-climbing.

 

Look for ways to enhance mobility. “Stairs can be a huge problem,” says Dr. Edelman. As home elevators become more compact and affordable, they can make it possible for someone to remain in a multi-story home. Also, a motorized wheelchair or scooter is useful when the disease is advanced and walking becomes difficult.

 

Also check out these sections of the COPD Caregiver Guide:

 

Eating Right with COPD

On the Road with COPD

At Work with COPD


Comments

Spouse with COPD and Depression

I am married to a wonderful man, who suffers from COPD and depression. We have been married for 22 years. It has been a hard road the last two years with dealing with his conditions. I love him so much, but he gets mad at me easily. I just stand beside him anyway. How do you make him understand it is not my fault he is sick? I myself have gone through bypas surgery for my heart condition 3 years ago. I enjoy life even more now. I feel guilty when I have to leave him to run errands because he is not able to go with me. He hasn't worked in at least 3 years. I try to do all I can for him, but it never seems to be enough. I am lost as to how to help him more than I have.

husband with copd

Ihave been married to a really sweet and wonderful husband for the past seven years. this is our second marriage. about seven years ago my husband found out that he had copd, caused by many years of smoking. Lately his mood swings have been hard to deal with and I am really trying hard to help him but its not easy. He seems to find fault with everything I do . I love my husband with all heart please help me help him.

Husband with COPD

Your post looks just like I would be writing.
I'm in the same boat. 2nd marriage for the both of us. 14 yrs strong till 3 months ago when he was diagnosed with COPD. We went to the Dr's for his mood swings and she took him off a certain type of inhaler. Seemed to be working, at least for a week. Tonight he had a couple of glasses of wine and went totally bezerk again. He was so angry. I know it's the compo of the two. Thank God he's asleep now!! He'll be better in the morning BUT, I was curious if you every got any help,advise from anyone her on this site? Can you offer me any advise?
" I love my husbandwith all my heart, please help me help him".

husband with copd

my husband just got diagnosed with copd 7 days ago he is only 32 years and going through angrer issues really bad . out of the blue he just gets so made and finds something to start a fight about. i love him to death and will stand by his side for the rest of my life ia m only 26 years old and dont know what to do to help him get through this any advice would greatly help thanks

Good husband (a.m.) Bad husband (p.m.)

Hi.....We've been married 12 years and 8 of them, he's been on oxygen 24/7. He was a bit short tempered when we met (he probably already had COPD and we didn't know it), but over the years, he's happy in the morning, singing, talking to the dog, etc. and by 3pm he's still OK but tired....then by 5pm, anything can set him off. After only one wine, he gets REALLY mad in seconds...swearing at me, etc......then can calm right down when reading the internet about football or politics. I am only 53 and he's 68......it is so hard to live with verbal abuse......I can't even show him a friend on Facebook (he doesn't give a @#CCS%^^ about somebody he doesn't know! But I have watched thousands of hours of football with him, hating it. I went back to school to get a new career....I can't wait for it to start Monday...this is sooooo boring...we never go anywhere, do anything, never eat out...and I have to do everything around here...the wind came up and I knew I'd better get everything in the garage....no husband to help with anything. Yes, I'm tired and worn out. No hope in sight.

Set your boundries

My heart goes out to all of you but hang in there. Last year, my husband of 23 years had to have heart surgery. He has always been highly active and it tore him apart to require the help of his family. He has always been short tempered but never abusive. After a procedure prior to his heart surgery he threw some food and became beligerent because he could not sit up to feed himself. Lucky for me I had recently read a book by Allison Bottke, Setting Boundaries with Your Aging Parents. In reading this book I realized that regardless of how someone is feeling they have no right to speak to you in an abusive manner. I allowed for my husband to have his little temper tantrum and after he was done I explained to him I was not going to tolerate this type of behavior, If he believed his behavior was appropriate then he would need to start looking for another caregiver. This definitely opened the lines of communication and needless to say my 45 year old husband and I managed to get through his surgery and recovery all while I was still caregiving for my 86 year old mother. My situation was nipped immediately and had not escalated to the cases I read hear but I do suggest reading Bottke's book. She has a book which was supposed to come out last spring called Setting Boundries with Difficult People
My keys to caregiving are:
1.Pray to God, Listen to God, Trust in God , Pray some more
2.Never feel guilty to have a little fun on your own
3. Allow others to help even if they don't do things the way you do
4. MOST IMPORTANT
Know the difference between helping and enabling
Helping - to do something for someone that they can not do for themselves
Enabling- Doing something for someone that they can do for themselves

Good Luck and know I'm praying for you.