RESOURCE LIST FOR CAREGIVER SUPPORT
The following organizations may helpful in helping you get some caregiver support:
ARCH National Respite Network
Chapel Hill Training-Outreach Project, Inc.
800 Eastowne Drive
Chapel Hill, NC 27514
About Us: "The mission of the ARCH National Respite Network is to assist and promote the development of quality respite and crisis care programs; to help families locate respite and crisis care services in their communities; and to serve as a strong voice for respite in all forums." The Network includes "the National Respite Locator Service, a service to help caregivers and professionals locate respite services in their community, and the National Respite Coalition, a service that advocates for preserving and promoting respite in policy and programs at the national, state, and local levels."
1715 Yankee Doodle Road
Eagan, MN 55121
About Us: CaringBridge provides "free, personalized websites that support and connect loved ones during critical illness, treatment and recovery." guestbook messages."
National Hospice & Palliative Care Organization (NHPCO)
1731 King Street, Suite 100
Alexandria, Virginia 22314
About Us: The NHPCO is "the largest nonprofit membership organization representing hospice and palliative care programs and professionals in the United States. The organization is committed to improving end of life care and expanding access to hospice care with the goal of profoundly enhancing quality of life for people dying in America and their loved ones."
About Us: Caring Connections is "a program of the National Hospice and Palliative Care Organization (NHPCO), is a national consumer and community engagement initiative to improve care at the end of life, supported by a grant from The Robert Wood Johnson Foundation."
Children of Aging Parents (CAPS)
P.O. Box 167
Richboro, PA 18954
About Us: CAPS is " a nonprofit, charitable organization whose mission is to assist the nation's nearly 54 million caregivers of the elderly or chronically ill with reliable information, referrals and support, and to heighten public awareness that the health of the family caregivers is essential to ensure quality care of the nation's growing elderly population."
Family Caregiver Alliance
180 Montgomery Street
San Francisco, CA 94104
About Us: FCA is "a public voice for caregivers, illuminating the daily challenges they face, offering them the assistance they so desperately need and deserve, and championing their cause through education, services, research and advocacy."
Friends' Health Connection
P.O. Box 114
New Brunswick, NJ 08903
About Us: "Friends' Health Connection enhances mind, body and soul through our personalized support network and dynamic educational and motivational programs."
Home Instead Senior Care
13323 Caifornia Street
Omaha, NE 68154
About Us: "The Home Instead Senior Care family network of locally owned franchise offices was developed with a passionate desire to be your trusted home health care agency to help your family keep your aging mother, father, grandparents or friends in their home as they grow older."
Hospice Education Institute (HEI)
3 Unity Square
P.O. Box 98
Machiasport, ME 04655
About Us: "The Institute works to inform . . . to educate . . . and to support . . . people seeking or providing care for the dying and the bereaved, or themselves coping with far advanced illness, or with loss."
Hospice Foundation of America
1621 Connecticut Ave., NW
Washington, DC 20009
About Us: The mission of the HFA is to provide "leadership in the development and application of hospice and its philosophy of care with the goal of enhancing the U.S. health care system and the role of hospice within it."
The Institute for Caregiver Education
162 Farm Credit Drive
Chambersburg, PA 17202
About Us: The Institute is "a non-profit organization dedicated to transforming eldercare from a clinical model to a social model of care, known in the industry as 'Culture Change.' "
The Leeza Gibbons Memory Foundation
3050 Biscayne Boulevard, Suite 605
Miami, Florida 33137
Phone: 1-888-OK-Leeza (1-888-655-3392)
About Us: "Leeza's Place is a multifaceted reprieve, for both caregivers and the recently diagnosed, that integrates educational programs, connective social activities, emotional support, and intergenerational programming designed to help you navigate through your community's continuum of care."
Make-A-Wish Foundation® of America
3550 North Central Avenue, Suite 300
Phoenix, AZ 85012-2127
Phone: 1-602-279-WISH (9474)
Toll Free: 1-800-722-WISH (9474)
About Us: "We grant the wishes of children with life-threatening medical conditions to enrich the human experience with hope, strength and joy."
National Alliance for Caregiving
4720 Montgomery Lane, 5th Floor
Bethesda, MD 20814
About Us: The NAC was "created to conduct research, do policy analysis, develop national programs, increase public awareness of family caregiving issues, work to strengthen state and local caregiving coalitions, and represent the US caregiving community internationally."
National Family Caregivers Association
10400 Connecticut Avenue
Kensington, MD 20895-3944
Toll Free: 1-800-896-3650
About Us. The NFCA "educates, supports, empowers and speaks up for the more than 50 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age."
The National Association of Area Agenices on Aging (n4a)
1730 Rhode Island Ave, NW, Suite 1200
Washington, DC 20036
About Us: "We advocate on behalf of our member agencies for services and resources for older adults and persons with disabilities. Action characterizes how we move our agenda forward, and when there is a question about aging, we have the Answers on Aging. We work with our members in achieving our collective mission of building a society that values and supports people as they age." The n4a administers the Eldercare Locator.
The Eldercare Locator
About Us: The Locator is "a public service of the U.S. Administration on Aging [to] find helpful resources for older adults, caregivers and professionals."
Rosalynn Carter Institue for Caregving
800 GSW Drive
Georgia Southwestern State University
Americus, Georgia 31709-4379
About Us: RCI "establishes local, state and national partnerships committed to building quality long-term, home and community- based services. We believe this begins with providing caregivers with effective supports and making investments that promote caregiver health, skills and resilience. We also believe strongly in the need to provide greater recognition and support for professional and family caregivers."
ShareTheCaregivingTM , Inc
c/o National Center for Civic Innovation
121 Avenue of the Americas, 6th Floor
New York, NY 10013
Phone: 1-212-991-9688, 1-212-991-9689
About Us: "ShareTheCaregivingTM , Inc. seeks to inform and educate healthcare providers, corporations, communities, clergy, universities, and individuals about Share The CareTM TM, a model that details how ordinary people can create and operate a unique extended family-type support system to care for a friend or loved one, whether for a month or for years."
Well Spouse Association
63 West Main Street
Freehold, NJ 07728
About Us: The WSA "advocates for and addresses the needs of individuals caring for a chronically ill and/or disabled spouse/partner...[offering] peer to peer support and educate health care professionals and the general public about the special challenges and unique issues "well" spouses face every day."