RESOURCE LIST FOR OTHER CONDITIONS
The following organizations may be helpful in helping you care for someone with a variety of other conditions:
American Celiac Disease Alliance
2504 Duxbury Place
Alexandria, VA 22308
Phone: 1-703-622-3331
Email: info@americanceliac.org
About Us: The ACDA "represents and advocates on behalf of the entire celiac community -- patients, physicians, researchers, and food manufacturers, and other service providers."
American Tinnitus Association
522 S.W. Fifth Avenue
Suite 825
Portland, OR 97204
OR
P.O. Box 5
Portland, OR 97207
Phone: 1-503-248-9985
Toll Free: 1-800-634-8978
Fax: 1-503-248-0024
Email: tinnitus@ata.org
About Us: The ATA is "the nation's foremost organization working to...discover the sources of tinnitus, to identify the best methods that will help people cope with their tinnitus and, especially, to find a cure for this often devastating condition."
Anxiety Disorders Association of America
8730 Georgia Ave., Suite 600
Silver Spring, ND 20910
Phone; 1-240-485-1001
Fax: 1-240-485-1001
Email: information@adaa.org
About Us: The ADAA is "a national nonprofit organization dedicated to the prevention, treatment, and cure of anxiety disorders and to improving the lives of all people who suffer from them."
Brain Injury Association of America
1608 Spring Hill Road,
Suite 110
Vienna, VA 22182
Phone: 1-703-761-0750
Fax: 1-703-761-0755
OR
National Brain Injury Information Center.
Brain Injury Information Only
Toll Free: 1-800-444-6443
About Us: BIAA "is the leading national organization serving and representing individuals, families and professionals who are touched by a life-altering, often devastating, traumatic brain injury (TBI)."
Children's Tumor Foundation
95 Pine Street, 16th Floor
New York, NY 10005
Phone: (800) 323-7938
Fax: (212) 747-0004
About Us: "The Children's Tumor Foundation is a non-profit medical foundation, dedicated to improving the health and well being of individuals and families affected by the neurofibromatoses (NF)."
Food Allergy & Anaphylaxis Network
11781 Lee Jackson Highway, Suite 160
Fairfax, VA 22033-3309
Phone: 1-800-929-4040
Fax: 1-703-691-2713
Email: faan@foodallergy.org
About Us: FAAN's mission is "to raise public awareness, to provide advocacy and education, and to advance research on behalf of all those affected by food allergies and anaphylaxis."
Hepatitis Foundation International
504 Blick Drive
Silver Spring, MD 20904-2901
Phone: 1-301-622-4200
Toll Free: 1-800-891-0707
Fax:
1-301-622-4702
Email: hfi@concast.net
About Us: HFI is "dedicated to the eradication of viral hepatitis, a disease affecting over 500 million people around the world."
International Foundation for Functional Gastrointestinal Disorders
PO Box 170864
Milwaukee, WI 53217-8076
Phone: 1-414-964-1799
Toll-free: 1-888-964-2001
Fax: 1-414-964-7176
E-mail: iffgd@iffgd.org
About Us: The IFFGD works "with patients (both adults and children), families, physicians, practitioners, investigators, employers, regulators, and others to broaden understanding about gastrointestinal disorders and support or encourage research."
Lyme Disease Foundation
P.O. Box 332
Tolland, CT 06084
Phone: 1-860-870-0070
Toll Free: 1-800-886-5963
Fax:
1-860-870-0080
Email: info@lyme.org
About Us: The LDF is "the premier nonprofit dedicated to finding solutions for tick-borne disorders."
Muscular Dystrophy Association National Headquarters
3300 E. Sunrise Drive
Tucson, AZ 85718
Phone: 1-800-572-1717
Email: mda@mdausa.org
About Us: MDA "combats neuromuscular diseases through programs of worldwide research, comprehensive medical and community services, and far-reaching professional and public health education."
Myasthenia Gravis Foundation of America
355 Lexington Avenue, 15th Floor
New York, NY 10017
Phone: 1-212-297-2156
Toll Free: 1-800-541-5454
Fax: 1-212-370-9047
About Us: MGFA is "the only national volunteer health agency dedicated solely to the fight against myasthenia gravis."
National Fibromyalgia Association
2121 S. Towne Centre Place, Suite 300
Anaheim, CA 92806
Phone: 1-714-921-0150
Fax: 1-714-921-6920
About Us: The NFA's mission is: "To develop and execute programs dedicated to improving the quality of life for people with fibromyalgia."
National Headache Foundation
820 North Orleans, Suite 217
Chicago, IL 60610-3132
Phone: 1-312-274-2650
1-888-NHF-5552 (643-5552)
Email: info@headaches.org
About Us: The NHF "exists to enhance the healthcare of headache sufferers. It is a source of help to sufferers' families, physicians who treat headache sufferers, allied healthcare professionals and to the public."
National Reye's Syndrome Foundation
PO Box 829
Bryan, OH 43506
Phone: 1-800-233-07393
Email: nrsf@reyessyndrome.org
About Us: The NRSF is "the only citizen group generating a concerted, organized lay movement to eradicate Reye's Syndrome."
National Schizophrenia Foundation
403 Seymour Street, Suite 202
Lansing, MI 48933
Phone: 1-517-485-7168
Toll Free: 1-800-482-9534
Fax: 1-517-485-7180
About Us: The mission of the NSF is "to develop and maintain support groups for individuals, and their friends and family members, affected by schizophrenia and related disorders; and to be a broad resource for all persons regarding schizophrenia and related disorders through education, information, and public awareness services."
Scleroderma Foundation
300 Rosewood Drive, Suite 105
Danvers, MA 01923
Phone: 1-978-463-5843
Toll Free: 1-800-722-HOPE (4673)
Fax: 1-978-463-5809
Email: sfinfo@scleroderma.org
About Us: The Scleroderma Foundation is "the national organization for people with scleroderma, their families and friends."
Sickle Cell Disease Association of America, Inc.
231 East Baltimore Street, Ste. 800
Baltimore, MD 21202
Phone: 1-410-528-1555
Toll Free: 1-800-421-8453
Fax: 1-410-528-1495
Email: scdaa@sicklecelldisease.org
About Us: The SCDAA's mission is: "To advocate for and enhance our membership's ability to improve the quality of health, life and services for individuals, families and communities affected by sickle cell disease and related conditions, while promoting the search for a cure for all people in the world with sickle cell disease."
Stuttering Foundation of America
3100 Walnut Grove Road, Suite 603
P.O. Box 11749
Memphis, TN 38111-0749
Phone: 1-901-452-7343
Toll Free: 1-800-992-9392
Fax: 1-901-452-3931
Email: info@stutteringhelp.org
About Us: The Foundation's goal is "to provide the best and most up-to-date information and help available for the prevention of stuttering in young children and the most effective treatment available for teenagers and adults."
Substance Abuse and Mental Health Services Administration
SAMHSA's National Clearinghouse for Alcohol and Drug Information
P.O. Box 2345
Rockville, MD 20847-2345
Toll Free: 1-877-SAMHSA-7 (726-4727)
1-800-729-6686
Espanol: 1-877-767-8432
TDD: 1-800-487-4889
Fax: 1-240-221-4292
About Us: NCADI is "the Nation's one-stop resource for information about substance abuse prevention and addiction treatment."
Tuberous Sclerosis Alliance
801 Roeder Road, Suite 750
Silver Spring, MD 20910
Phone: 1-301-562-9890
Toll Free: 1-800-225-6872
Fax: 1-301-562-9870
Email: info@tsalliance.org
About Us: The Alliance's mission is "to improve the quality of life for individuals and families affected by tuberous sclerosis complex through the stimulation and sponsorship of research, the development of programs, support services and resource information, and the development and implementation of public and professional education programs designed to heighten awareness of TSC."