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ROLE OF A LIFETIME

Giving up her Big City dream, a Midwest girl takes on the reality of caring for her mother—and discovers the relationship she might otherwise have missed.

She had her future all planned. A college student majoring in theatre and journalism, Bridget Bennett intended to go to New York after graduation and become an actress. But fate had another role in store for her: Caregiver.

Flashback to 1996: Bridget, who lived in the Columbus, Ohio, suburb of Grove City, was in her third year at Ohio State University when she got devastating news: her mother had been diagnosed with breast cancer. Bridget's father had died of a heart attack in 1994, so her mother's illness hit then-19-year-old Bridget and her two siblings-brother Brett, then 24, and sister Brittany, then 15-doubly hard. The teenaged Brittany even asked, "Does this mean Mom's going to die, too?" Trying to reassure her sister, Bridget said, "We have to take one day at a time." It's a philosophy she's lived by through the difficult decade since.

Her mother, Helene, said Bridget was now needed in the family business, Mike Bennett Insurance. "Mom had inherited it when Dad died," Bridget says. "She never worked in the company; she'd been an Avon sales manager. But my brother was already an agent there."

Bridget switched from college to the PIA insurance school, and after a few months she was a licensed agent, handling both home and auto insurance. "It's not something I had dreamed of doing," she admits, "but I enjoy working with the people."

Her more difficult job has been caring for her mother. "Mom had a radical mastectomy and chemotherapy. Doctors were encouraging that the cancer wouldn't go further because it had been in just one lymph node."

When her mother went into remission, Bridget says she felt confident about the future. But three years later, in 1999, there was a recurrence of the cancer. "I was more devastated than the first time," Bridget explains. And since then, the cancer has slowly but relentlessly continued to spread.

Bridget and her siblings, who were all living at home, tried to share the caregiving responsibilities. They installed a "baby monitor," or portable intercom, in their mother's room so she could call when she needed help. Bridget got in the habit of carrying the receiver around with her. She and her sister took on the tasks of cleaning their mother's wounds and taking her to the doctors and for IV infusions. "I used to be queasy about open wounds and things like that," Bridget says, "but now it doesn't bother me." Her brother, Brett, helps by doing errands. But, she says frankly, "he's a very private person and can't deal with the emotional stuff too much."

Bridget had lived at home even while in college, but started to find it increasingly stressful to be "an adult under my mother's roof. I'm very independent and I wanted my own place," she explains. So, in 2002, she moved out to her own apartment just a mile away from her mother's house. She goes to her mother every day, including evenings after work and often at lunchtime, as well.

Then, last June, Brittany got married. She and her husband, Matt, continued to live with Helene. "Brittany's afraid that if she leaves, everything will fall apart," Bridget says. "And Mom's known Matt for years, so he's like another kid to her. He helps, too, by making sure she gets enough to eat." But Bridget told her siblings, "The only way I'd move back in with Mom is if everyone else moved out."

Like many caregivers, she finds that one of the most helpful things she can do is be willing to listen to whatever her mother needs to talk about. "She talks to me more than to my sister or brother because we're a lot alike," states Bridget. "I'm outwardly emotional, too. One of the most frustrating things is when she's in pain and it's not time for medication. I rub her back and talk to her. Sometimes I cry with her."

The one time Bridget couldn't listen was when the cancer recurred and her mother began talking about her will and how much of her insurance policy could go for the funeral. "I was resistant," Bridget says. Last year a determined Helene, who's now 61, went ahead and "made her financial arrangements," Bridget reports.

Communication, Bridget has discovered, is a two-way street. "Dad had died so suddenly in his sleep; I never had a chance to tell him things. So, with Mom, I tell her everything I need to say."

She finds it very hard to see a parent weakening this way. "The mother who used to take me to Disney World and drive me all over the place can't drive, can't cook, and has to use a walker," says Bridget. "And it's strange to see her wanting to be in bed a lot. She used to tell me, ‘Don't sleep your life away,' but now she gets radiation so she's very tired."

When the scene becomes too overwhelming, Bridget tells her mother, "I have to go home for a while." Otherwise, she says, she'd be too drained to be helpful.

Bridget's social life is "on hold," she confides. "I had a couple of serious relationships when I was in college, but now I don't date much. I go out with Mom to movies, and good friends come with us." Bridget claims she doesn't miss dating. "Maybe I haven't found the person, but I'm still young."

And she hasn't totally divorced herself from her theatrical dreams. Last autumn she acted with a group called Kids In Kamp, an Ohio-based not-for-profit organization which puts on shows to raise money for children with cancer. "The play was a mystery and I played a lounge singer." The production included audience participation in teams of four to eight people. Volunteers were needed to help with the logistics, and Bridget found a way to get her mother involved. "Mom sat in a chair on one side handing out cue cards so people would know where to stand."

Fortunately for both of them, Helene is able to express her appreciation of all the caregiving that's been provided. "She told me I'm a wonderful daughter," Bridget says proudly. She has no second thoughts about her decision to focus her life around her mother. "When my father died, Mom was the definition of strength to all of us. We could always talk to her about how we were feeling. So I want her to know that when the chips are down, I'm there for her."

Comments

new life as a caregiver

This is about how you become a caregiver overnight. one day I picked up my mother to go to a doctors appointment. On this day something went wrong and she ended up in the hopital for almost two months. And before I knew what hit me I was living in her apatment with my husband and my apartment was left behind for 6 months. My husband, my youngest son and I have been doing everything for her. One day she is a very active person and next she can not even walk..Yes I have a brother and two sisters but they do not want to help at all. They say its to much for them..I thank god for my husband and son everyday. And you know as long as I have them nothing else matters, we have moved in with my mother and now we all have such a great time together, that my siblings are missing alot from it.

response to new life as a caregiver

Wow, your comment is exactly what happened to me. It has been over a year now with several rehab stays and hospital runs. Its so sad to see my once energetic, run cirlces around anyone mother, confined to a bed asking if I can get her some water or turn her over! Only one of by siblings help out. None of the 15 grandkids except mine help. They stop by to visit all upbeat, acting like it a temp thing, her not being able to walk. Very frustrating this whole caregiver thing. Trying to raise your family, work and worry about your parent. I too thank god for my 23 yr old daughter who is her 24/7 caregiver and yes the others do not know what they are missing.

Thank you for your post. It really hit home.

I've been a caregiver to my

I've been a caregiver to my husband with state 4 prostate cancer since january 2005. I now am at home with him 24 hrs a day. At times we have some very tender moments and at times we have some very tense moments due to frustration, confusion, and feelings. Is there anyone out there that can relate to the anxiety and feelings of being alone and having to give up all the things we enjoyed together for our 38 years of marriage. He is encredibly bored being at home all the time but he cannot ride in the car very long and his walking with the walker is very short distances. He has bone metatasis in the hips so the lift chair at home is the only chair he can sit in without being in great pain. Does anyone have any suggestions.
please respond.
rs

To RS

I think many of us who have cared for a spouse whose health was failing can relate to the anxiety, frustration, confusion, sense of loneliness and isolation you are experiencing. There is a sense of helplessness mixed in with a sense of grief, for you are mourning the relationship you once had.

But please remember that the love you once had is the love you still have, and that as exasperating as the situation is, you can still look into your husband's eyes and see the love, you can still listen to him say thank you and hear the love, you can hold his hand and feel the love.

Do not be discouraged by the tense moments; they are generated by fear, uncertainty, frustration and more—all of which is normal and for which you should feel no guilt. Those moments are not indicative of how you feel about each other. Rather, they are indicative of the effect the disease is having on the both of you. Those moments will pass. The loving, tender moments are what last forever.