Birth Defects and Genetic Disorders: Finding Help

Resources to assist you in getting aid and answers

 

Want to find information and assistand specific to a birth defect or genetic condition that has impacted your life? Try these links:

Autism: www.autismspeaks.org

Cerebral Palsy: www.ucp.org or www.cerebralpalsy.com

Congenital Heart Defects: www.pediheart.org

Cystic Fibrosis: www.cff.org or www.cysticfibrosis.com

Fragile X Syndrome: www.fragilex.org or www.fraxa.org

Down Syndrome: www.ndss.org or www.downsyndrome.com

Marfan Syndrome: www.marfan.org or www.americanheart.org

Sickle Cell: www.scinfo.org or www.sicklecelldisease.org

Spina Bifida: www.sbaa.org or Children with Spina Bifida Resource Guide for Parents

Tay-Sachs: www.ntsad.org

Also try the March of Dimes website for more information on these and other conditions: www.marchofdimes.com